Welcome to the PKU Adult Care Community & Support Website! This is a place where we have collected and organized resources to help you on your life-long PKU journey. Using these examples you can create your own care map, a personal resource to help you focus on critical needs and navigate care. Spending the time to develop your unique story on paper can provide a foundation for self care, empowerment and personal growth.

As this project evolves look for updates on care map workshops, facilitated zoom meetings by licensed practitioners and other tools to help you on your journey.